Infogirl, MS usually specifically causes problems with processing speed so, as a partner, I recommend giving information slowly, repeating information, and checking your mate "got it". Then they're more likely to be able to remember it later.
Carmela, there is no good evidence that hyperbaric oxygen therapy helps relapsing remitting MS.
No, it is not unusual. Having an immediate family member with MS does increase your risk for developing MS, but it is not uncommon to be diagnosed even when nobody else in your family has a history of MS.
Joanna, unfortunately the medications for relapsing MS have not been found to be helpful for MS without relapses. But, the good news is that tons of research is being done to find medications for progressive MS (both primary and secondary) so I'm optimistic we'll find one or more effective medications soon.
The International Progressive MS Alliance was recently formed because we desperately need more options for Progressive MS! It is a group of highly motivated MS researchers and specialists who are determined to find answers for Progressive MS. The National MS Society has also made this a top priority for research funding. There is exciting research being done, and I am very hopeful that we will make strides in the near future.
Jdpmom, a neurological examination helps us to know if there are new lesions but really the MRI is the best test. MRI often finds lesions that don't clearly affect the neurological examination. Hope your MRI next week is stable!
Make sure you are rotating your injection sites, and injecting into areas where you can pinch at least an inch of skin. Also make sure you are pausing at the end of the injection to ensure all the medication goes in, and that you aren’t pulling the needle out to soon. If you are still having a lot of bruising or injection site reactions you can speak to your patient support services for Betaseron and see if the injection nurse can work on it with you. They are really great resources, and can make a huge difference!
Margaret Hardwick, I suggest your husband check in with his neurologist to be sure there isn't some other reason he's progressed so rapidly this year after what sounds like a slow course for the previous 20 years.
Children of women with MS are more likely to develop MS then the general population. Recent research has shown that Vitamin D can have some protective effects, and that maintaining normal Vitamin D levels can help protect children of women with MS. Vitamin D levels can be checked by a primary care physician via a simple blood test.
Holli, it's great that you're still running but if you have terrible pain and tightness afterwards I wonder if you're pushing too hard. How about taking shorter, or less hilly runs? if you still want to get in that much exercise, more shorter runs may work out better.
How often you get MRIs done is going to depend heavily on what medication you are on, your Neurologist’s preferences, and how your physical exam is. If you are doing well then it may not be necessary to have MRIs done frequently, but many Neurologists use them to track progress and evaluate medication effectiveness.
Sharry, yes, we know that people with relapsing MS do better - fewer relapses, slower progression of disability - if they take MS disease modifying medication than if they don't.
Prescription strength Vitamin D is usually given for 12 weeks ( months). After that is finished your husband should be supplementing with whatever daily dosage his Neurologist recommends in order to maintain his levels.
Lilliana, we used to think that the underlying problem with progressive MS was similar to that with relapsing MS. We thought they were both an autoimmune problem and if we "turned down" the immune system it would work for both. When medications for relapsing MS didn't work for progressive we looked further and in the last few years are understanding much better that progressive MS is more of a degenerative problem so it will need a different approach.