Hello everyone, and welcome. I’m Valarie Basheda, WebMD’s Director of News and Special Projects. Today we’ll be watching the National Health Research Forum, a once-a-year gathering of top leaders talking about innovations in health and medicine research. We’ll be livestreaming the event taking place at the Newseum in Washington, D.C.
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The event will get started shortly before noon.
Writer Bara Vaida is at the Newseum for WebMD and will be sending updates during the event.
The event features three expert panels, each followed with a Q&A from the audience. The first one will get underway around noon, and will include Gary Gibbons, MD, Director of the National Heart, Lung and Blood Institute. He’ll be talking about where science is taking us in modern medicine.
Research America president Mary Woolley announces the organizations' "Campaign for Cures" initiative.
Its goal is to keep medical research on the candidates' agenda during the election season.
NIH is developing incredibly rich data sets of patient information by using mobile technology to collect blood pressure, heart rate and sleep rates, says Gary Gibbs, director of NIH's Heart Lung and Blood Institute. By making this data available widely the NIH can help accelerate new therapeutic discoveries.
Researchers need to frame the importance of a discovery in a way that enables policy makers to understand the significance of NIH funds, says Sudip Parikh, Batelle vice president and general manager of health & analytics. Parikh says he previously worked for Sen Arlen Specter, R-PA, and would explain the meaning of NIH funded discoveries so that the senator was comfortable voting for more NIH funding.
The costs of technologies being used in research such as Big Data and genome mapping will get cheaper, making it more likely that researchers will be able to test more possible outcomes, increasing the chances of there being a 1 in 3 success rate instead of 1 in 30, says Ron Mobed, CEO of Elsevier. "Researchers tell me there is just so much more information available and that could change success dynamics," says Mobed.
Elsevier wants to do what it can to get medical and science journals available digitally so that researchers have "everything they need to know" to reproduce study results, says Mobed.
The NIH makes reproducibility a key part of the grant making process to ensure the integrity of the research that it is funding, says Gibbons.
A way to get the public more comfortable with their medical information being used by researchers is to enable consumers to own that information first and let them decide how and where they want it to be used, says Gibbons.
In the UK, surveys show people are willing to share their data if they feel they own it. So companies are working on mobile techniques to enable people to do so, says Mobed.
The first panel just ended and the second will get underway shortly.
The second panel will focus on public health.
It will include: Richard Kronick, Ph.D., director, Agency for Healthcare Research and Quality; Lucinda L. Maine, Ph.D., R.Ph., executive vice president & CEO, American Association of Colleges of Pharmacy; Barbara Newhouse, president & CEO, The ALS Association; Anne Schuchat, M.D., director, National Center for Immunization and Respiratory Diseases, CDC, Reed V. Tuckson, M.D., FACP, managing director, Tuckson Health Connections.